Pip's Blog

Pip's Blog

Welcome to Pip's Blog, where our Centre Manager Pippa brings you up-to-date news from the Berkshire MS Therapy Centre and the MS community.

If you have any feedback or you would like to contact Pip email pippa@bmstc.org or call 0118 901 6000.

For older posts please visit http://pips-bmstc.blogspot.co.uk.

 

The Agony of Decision-making when It’s Time to Switch MS Medications

14 May 2018

Source Multiple Sclerosis News Today: I’m agonizing over an important decision and it’s driving me crazy. I’m usually a quick decision-maker, but this one is tough.

Molecule Whose Fragments Appear to Block Myelin Repair Identified in Study

14 May 2018

Source Multiple News Today: A molecule responsible for preventing the repair of white matter in the brain, a process critical to treating multiple sclerosis (MS) and cerebral palsy, has been identified.

The research, “A TLR/AKT/FoxO3 immune-tolerance like pathway disrupts the repair capacity of oligodendrocyte progenitors,” was published in The Journal of Clinical Investigation.

White matter in the brain’s white matter is composed of nerve fibres. Its colour comes from myelin...

Have your say with MS-UK!

14 May 2018

On Monday 21 May, Laura from MS-UK will be visiting us to find out what you think they could be doing as a charity to support people in the multiple sclerosis community – people like you!

Carers Lunch Club urgently need a new volunteer coordinator, could you help?

14 May 2018

The Carers Lunch Club meet on the second Thursday of every month from12.00pm to 2.30pm. Barbara Annells has done a sterling job coordinating the club for many years, however, she has decided to stand down at the end of this year. They desperately need someone to step in and volunteer as their coordinator so they can continue to meet.

Volunteer celebration at this years AGM - 7th June 2018 - Please don't forget to RSVP!

14 May 2018

At this years’ AGM we will be celebrating our wonderful volunteers. Join us for food and drink as we celebrate the fantastic contribution our volunteers make.

Did you receive our important request?

20 April 2018

To comply with the new data protection regulation, we recently posted or emailed a request to people on our regular mailing list. We asked if you would like us to stay in touch and what your correspondence preferences were. Thank you to those who have responded to this request.

Fingolimod may help prevent brain volume loss in Relapsing-Remitting Multiple Sclerosis

20 April 2018

Source Neurology Advisor: In patients with relapsing-remitting multiple sclerosis (RRMS), fingolimod may protect against deep gray matter (dGM) and thalamus volume loss and may also lead to slower disability progression compared with placebo, according to an analysis published in Neurology.

The missing link: why disabled people can’t afford to #DeleteFacebook

20 April 2018

Source The Guardian: Revelations about internet companies being negligent with our data have prompted a backlash against social media, but for many people in marginalised groups these networks are a vital lifeline

Flying disabled: Trouble in the skies

20 April 2018

Source BBC: Disabled passengers: 'Don’t even think about going to the toilet'

What causes MS?

20 April 2018

Source MS Trust: The causes of MS are not well understood and there are a number of factors to be considered. You may wonder whether you did something to cause your MS or if you could have stopped MS from happening to you. The answer is 'no'. No one could have advised you how to prevent your MS.

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