Blog: MS news

Remap - making things possible, custom made equipment provided free of charge.

16 July 2018
Pippa Vincent-Cooke

Source Remap: Remap is a national charity that works through local groups of skilled volunteers. We help disabled people achieve independence and a better quality of life by designing and making equipment for their individual needs. This tailor-made equipment helps people to carry out essential daily tasks without having to ask for help, or helps them take part in leisure occupations or sports that would otherwise be impossible.

Our focus at Remap is to give people independence...

Having MS is enough. It shouldn't be made harder by a welfare system that doesn't make sense.

19 June 2018
Pippa Vincent-Cooke

Source MS Society: Welfare support is vital for many people with MS. It helps us manage the extra costs of the condition, stay in work for longer and participate fully in society.

Delayed start date of the Workout Walking classes in Prospect Park

18 June 2018
Pippa Vincent-Cooke

We are changing the start date to Wednesday the 4th of July at 3.30-4.30 to see if we can get enough participants.

Volunteers needed for Valuing Goals study

4 June 2018
Pippa Vincent-Cooke

Most of us have ‘goals’ - things that we want to achieve, and we think can be achieved with a bit of effort. However, sometimes we don’t make as much progress on our goals as we would like to. Sometimes things get in the way and other times we are not sure what we need to do to make progress. In addition, sometimes we lack motivation because the goals are not clearly linked to what we really value and enjoy.

“Valuing Goals” is an online training programme that helps people to...

The Agony of Decision-making when It’s Time to Switch MS Medications

14 May 2018
Pippa Vincent-Cooke

Source Multiple Sclerosis News Today: I’m agonizing over an important decision and it’s driving me crazy. I’m usually a quick decision-maker, but this one is tough.

Molecule Whose Fragments Appear to Block Myelin Repair Identified in Study

14 May 2018
Pippa Vincent-Cooke

Source Multiple News Today: A molecule responsible for preventing the repair of white matter in the brain, a process critical to treating multiple sclerosis (MS) and cerebral palsy, has been identified.

The research, “A TLR/AKT/FoxO3 immune-tolerance like pathway disrupts the repair capacity of oligodendrocyte progenitors,” was published in The Journal of Clinical Investigation.

White matter in the brain’s white matter is composed of nerve fibres. Its colour comes from myelin...

Have your say with MS-UK!

14 May 2018
Pippa Vincent-Cooke

On Monday 21 May, Laura from MS-UK will be visiting us to find out what you think they could be doing as a charity to support people in the multiple sclerosis community – people like you!

The missing link: why disabled people can’t afford to #DeleteFacebook

20 April 2018
Pippa Vincent-Cooke

Source The Guardian: Revelations about internet companies being negligent with our data have prompted a backlash against social media, but for many people in marginalised groups these networks are a vital lifeline

What causes MS?

20 April 2018
Pippa Vincent-Cooke

Source MS Trust: The causes of MS are not well understood and there are a number of factors to be considered. You may wonder whether you did something to cause your MS or if you could have stopped MS from happening to you. The answer is 'no'. No one could have advised you how to prevent your MS.

New research shows excess myelin goes to the wrong part of nerve

20 April 2018
Pippa Vincent-Cooke

Source MS Society: Researchers at the MS Society Edinburgh Centre for MS Research have found that extra myelin can be sent to the wrong part of the nerve – an important insight for MS treatments.

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