Blog: Campaigning

Update from the Berkshire MS Therapy Centre - 2 October

2 October 2020

Your weekly update

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ICYMI: Share your views about hydrotherapy in Berkshire West

1 October 2020

In case you missed it in August, Berkshire West CCG is looking for your views on hydrotherapy at the Royal Berkshire Hospital in Reading

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The MS Society went to 10 Downing Street with their ambassador Janis Winehouse

24 January 2020

Pippa Vincent-Cooke

Source MS Society: The MS Society went to 10 Downing Street yesterday with their ambassador Janis Winehouse and campaigner Ashley Arundale to deliver a message to the PM: Unfair PIP assessments must change.

"More than 21,000 of us have signed an open letter demanding the UK Government makes changes to Personal Independence Payment (PIP). The open letter came after our research showed major flaws with the system.

It highlights some of our concerns with PIP, including...

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Launching an MS manifesto for the UK general election

11 November 2019

Pippa Vincent-Cooke

Source MS Society: After months of speculation, the UK government has called a general election for Thursday 12 December. But what do people with MS want from our next government?

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Scrap the PIP 20-metre rule

10 April 2019

Pippa Vincent-Cooke

Source MS Society: Scrap the PIP 20-metre rule.

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Letter calls for ocrelizumab to be made available for people with PPMS

6 February 2019

Pippa Vincent-Cooke

Source MS Trust: A letter signed by the MS Society, MS Trust, Shift MS and leading neurologists calls on NICE, NHS England and drug manufacturer Roche to make ocrelizumab available for people with primary progressive MS.

Back in September, NICE announced that it would not be recommending ocrelizumab as an NHS treatment for early primary progressive MS. This decision was met with anger and dismay from people with MS and MS charities, and the MS Society started a petition, calling for...

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Justin Levene’s Luton airport protest is a watershed for disabled people

22 November 2018

Pippa Vincent-Cooke

Source The Guardian: If all disabled people posted videos of being stuck on planes and trains, airlines and rail companies would have to change.

Watching Justin Levene drag himself across the floor at Luton airport – his wheelchair had been lost in transit – might be a watershed for disabled people and our quest for better treatment in the aviation and travel industry.

For too long travel providers have had an eyes-wide-shut attitude in their duty of care to wheelchairs users...