Blog: Campaigning

People with primary progressive MS need ocrelizumab now

12 September 2018

Source MS Society: Ocrelizumab should be available on the NHS for everyone with primary progressive MS who could benefit. We call on NHS England, the National Institute of Health and Care Excellence (NICE) and Roche to work together to secure a deal to make that happen.

MS patients denied drug which could keep them out of wheelchair

12 September 2018

Source the Telegraph: “As doctors, we are left feeling powerless when we deliver the devastating diagnosis of PPMS to people because we know there is currently no disease-modifying treatment available to help them.

“It is even more frustrating that an effective treatment that can help slow the disease has been developed and made available across the globe yet people in England and Wales will continue to suffer disability worsening because of an archaic and inflexible medicine assessment system.”

Government to end unnecessary PIP reviews for people with most severe health conditions

19 June 2018

Source Gov.UK: People with the most severe, life-long conditions will no longer have to attend regular reviews for Personal Independence Payment (PIP) .

Having MS is enough. It shouldn't be made harder by a welfare system that doesn't make sense.

19 June 2018

Source MS Society: Welfare support is vital for many people with MS. It helps us manage the extra costs of the condition, stay in work for longer and participate fully in society.

Flying disabled: Trouble in the skies

20 April 2018

Source BBC: Disabled passengers: 'Don’t even think about going to the toilet'

MS Trust Ocrelizumab questionnaire

9 February 2018

If you have a spare moment, please do fill in the MS Trust short questionnaire about ocrelizumab, and help us make a strong case to NICE for this drug to be made available on the NHS.

A message from Trishna

17 October 2017

A message from Trishna

I've been asked to help source participants for a focus group that I'm attending to look at a new patient platform that has been developed to make the clinical trials process more patient-friendly.

PIP and ESA Assessments

4 October 2017

Source Parliament UK:

As part of our inquiry on PIP and ESA Assessments, the Work and Pensions Committee would like to hear about your experience of claiming PIP or ESA.

DWP spends £39m defending decisions to strip benefits from sick and disabled people

30 August 2017

Source Independent:

Ministers have spent almost £40m in an “appalling” attempt to stop sick and disabled people receiving the financial help they are entitled to, The Independent can reveal.

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