Content labelled as: Campaigning

The MS Society went to 10 Downing Street with their ambassador Janis Winehouse

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Source MS Society: The MS Society went to 10 Downing Street yesterday with their ambassador Janis Winehouse and campaigner Ashley Arundale to deliver a message to the PM: Unfair PIP assessments must change.

"More than 21,000 of us have signed an open letter demanding the UK Government...

Launching an MS manifesto for the UK general election

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Source MS Society: After months of speculation, the UK government has called a general election for Thursday 12 December. But what do people with MS want from our next government?

Scrap the PIP 20-metre rule

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Source MS Society: Scrap the PIP 20-metre rule.

Letter calls for ocrelizumab to be made available for people with PPMS

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Source MS Trust: A letter signed by the MS Society, MS Trust, Shift MS and leading neurologists calls on NICE, NHS England and drug manufacturer Roche to make ocrelizumab available for people with primary progressive MS.

Back in September, NICE announced that it would not be recommending...

Justin Levene’s Luton airport protest is a watershed for disabled people

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Source The Guardian: If all disabled people posted videos of being stuck on planes and trains, airlines and rail companies would have to change.

Watching Justin Levene drag himself across the floor at Luton airport – his wheelchair had been lost in transit – might be a watershed for...

The Government has changed the law to make cannabis for medicinal use legal under prescription.

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Source MS Society: The Government has today changed the law to make cannabis for medicinal use legal under prescription.

Former watchdog chief labels disabled benefits process a 'hostile environment'

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Source The Guardian: Andrew McDonald, who chaired Independent Parliamentary Standards Authority, says the system is ‘Kafka-esque’

Medical Cannabis To Be Available On Prescription ‘Within Weeks’

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Source Huffington Post: Medical cannabis will be available on prescription in the UK within a month, according to The Telegraph.

MS patients denied drug which could keep them out of wheelchair

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Source the Telegraph: “As doctors, we are left feeling powerless when we deliver the devastating diagnosis of PPMS to people because we know there is currently no disease-modifying treatment available to help them.

“It is even more frustrating that an effective treatment that can help slow the disease has been developed and made available across the globe yet people in England and Wales will continue to suffer disability worsening because of an archaic and inflexible medicine assessment system.”

People with primary progressive MS need ocrelizumab now

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Source MS Society: Ocrelizumab should be available on the NHS for everyone with primary progressive MS who could benefit. We call on NHS England, the National Institute of Health and Care Excellence (NICE) and Roche to work together to secure a deal to make that happen.

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